What is this study about?

Please take your time to read this information form about the study before you decide whether or not you want to take part.

It is important you understand why this study is being done and what you will be asked to do. Please take your time reading this information and do not hesitate to contact me if you have any questions or queries. Contact details can be found below.

Why is this study being done?

This study is going to improve our understanding of why young adults attend, or don’t attend the diabetes clinic. We are not yet sure what exactly makes a good clinic or what can make young people miss appointments, or stop going to the clinic altogether. We need to know more about your views of the diabetes clinic to be able to make important changes and improvements.

Who can take part in this study?

Young adults with type 1 diabetes, aged between 18 and 30 years are invited to take part in this study.

Do I have to take part?

You do not have to take part in this study. This information is intended to help you decide whether or not you would like to take part, but the decision is up to you. If you decide to take part and complete the questionnaire, you are free to stop and leave the study, by exiting the questionnaire, at any point and without giving a reason.

What does taking part involve?

You will be asked to complete a questionnaire if you decide to take part in this study, which will take about 20 minutes. If you click on the link to the questionnaire in the ‘I want to complete the questionnaire’ section of this website, in first page you will be asked to give your consent to take part in this study before continuing on to the questionnaire. In the questionnaire you will be asked to respond to questions about your diabetes, the things you do to take care of your diabetes, how you feel about having diabetes, how satisfied you are about the health service for diabetes care, and how often you go to appointments in the hospital.

What are the possible benefits of taking part?

Taking part in this study may give you a chance to share information about you as a young adult with type 1 diabetes, which this research team will study to develop ideas to improve services and resources for young adults with type 1 diabetes.

What are the possible risks of taking part?

The most important thing is that you understand what this study is about and are sure that you are happy to take part, if that is what you decide. We would like to assure you that we are available to answer any questions and provide information if we can.

Things may come up as you complete the questionnaire that cause you distress. If that happens to you, we urge you to contact us and we will assist you in accessing a support service.

What happens at the end of the study?

The information we get from the participants in this study will be put together and examined. At the end of this study we will post a report describing what we find out on this website and our facebook page. The results of this study may be published but you will not be identified in any way.

Will my information be anonymous?

The information you provide will be kept strictly anonymous and your participation in the study will be private. The information will be stored securely and in a way that protects your identity. You will not be asked to provide your name.

 If you have any concerns about this study and wish to contact someone independent and in confidence, you may contact ethics@nuigalway.ie.

We would like to thank you for taking the time to read this information, and to remind you that we are happy to answer any questions you may have. Also, remember you are free to decline to take part in this study or to change your mind at any time without consequences or questions.

Contact details:

Lisa Hynes, School of Psychology, AMBE, NUI, Galway. E-mail – l.hynes2@nuigalway.ie

Dr Molly Byrne, School of Psychology, AMBE, NUI, Galway. E-mail – molly.byrne@nuigalway.ie

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