For the last 3 years our team has been working on a project to develop a better understanding of why young adults go to their diabetes clinic appointments, and why they sometimes miss appointments. Our team includes psychologists, doctors, nurses, researchers and young adults with type 1 diabetes.
Having a good working relationship with a team of diabetes specialists is an important part of life with type 1 diabetes, but it’s not something that has gotten that much attention from health care professionals or researchers. We have done two other projects in the last 3 years to learn more about diabetes clinics, and they have brought us to this final project in the Your Diabetes Clinic study.
So what have we done so far? Well, in the first project we searched online databases to find as many research projects as we could from around the world to see what other teams have already found out about diabetes services for young adults with type 1 diabetes. We found out some really interesting things, for example, when young adults meet the team in the adult diabetes service before they move from the pediatric diabetes service, they are more satisfied and more likely to make it to their diabetes clinic appointments. The next project involved us interviewing 29 people to find out about their experiences with diabetes services and their ideas about making improvements. The people we interviewed included young adults with type 1 diabetes, doctors, nurses, a clinic administrator, and a dietitian, so they knew what they were talking about! The big take away message from this project was about the importance of young adults and staff in diabetes clinics being familiar with each other, so that they understand each other, can work together to set goals and solve problems, and make the best use of their time together during appointments.
So, here we are in the middle of our last project in the Your Diabetes Clinic study! All of the questions in this questionnaire were included based on the evidence we gathered during the 2 previous projects. The responses that we get from all of the young adults who complete the questionnaire will provide a big picture of the factors that influence young adults to go to their diabetes appointments, or not. This information will be really useful to the people involved in providing diabetes services because they will know more about what young adults need and want. Young adults who take part in this project can contribute their experiences and opinions which will be represented in the results of this project.
We will share the results of this project on this website during the summer!!
Remember if you would like to do our questionnaire, you are aged between 18 and 30 and have type 1 diabetes, please click on the link in the ‘I want to complete the questionnaire’ section!